My Story
What happens when you have several unrelated symptoms making it difficult for the doctors to pinpoint the underlying issue? How many weeks are you willing to accept wishy-washy explanations from disinterested specialists while enduring off-the-charts levels of pain? At what point do you stop listening, take matters into your own hands, and finally say, "Somebody help me!"
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That's exactly what happened to me. In 2021, my primary physician and gynecologist worked tirelessly for nearly 4 months trying to figure out the root cause of my pain. Meanwhile, the first oncologist I was seeing didn't seem interested in solving the mystery in a timely fashion. They only seemed interested in being "the one" who could claim the diagnosis for their own; and the moment they realized they were not going to be planting any flags, they wrote me off. I was adrift, in pain, and in the shadow of constant fear.
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"Round the Twist: Facing the Abdominable" chronicles my 15-month journey from the very first symptoms (ovarian cysts) to diagnosis (Stage-4C colon cancer), through four surgeries, chemotherapy, and radiation. When I was going through all of this, the last thing I wanted to read was a "how-to Cancer" book. Coping with the physical effects of cancer treatments is easy compared to dealing with the reality of "having cancer." I set out to document my experience as a way to fill that void.
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At its heart, the book is a story of hope and resilience, but also one of sadness at the loss of innocence. Having a body and mind ready to face something as unbelievable as late-stage, terminal cancer, at the age of 47 is not as easy as it sounds. I am a lifelong vegan, yogi, and health nut -- I was not supposed to get any kind of cancer. How does one wrap their brain around this surreality?
Since my diagnosis, I have seen so many others struggling to beat their cancer, some with the exact same diagnosis and treatments that I had. The statistics are still not in my favor. Exactly one year ago, in the summer of 2022, I was still going through the radiation treatments that nearly killed me. I am only 18 months past my original diagnosis. I have not even had a year's worth of clear scans yet. I am not dancing in the streets proclaiming that I'm cured, the doctors haven't even used the word "remission" yet. I am cautiously optimistic that all these positive signs point to me surviving long enough to be on the right side of the 5-year, 10% survival rate, statistic.
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I have asked myself so many times in the past year, how could I be so lucky that 6 doses of chemo, 29 rounds of radiation, and 4 surgeries seem to have saved my life? And I keep coming back to these lines from the book: "But was it luck? Or had the very real, focused attention, expertise, and goodwill of an entire team of people, coupled with my moxie, made this happen? Luck played no part in this. My exhausted body and exhausted husband were a testament to that." ©LisaFebre2023
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Video:
The Team of Grownups
Cindy
Radiation Nurse*, this woman is a lifesaver in so many ways...
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*I incorrectly referred to her as "Dr. Menzel's assistant in the book.
Dr. Menzel & Dr. Jacobs
What else can I say except these two saved my life.
(And they were good sports during our photo shoot!)
Rémy & Martha
Their official titles are Nutritionist and Nurse Navigator, but secretly they are Wonderwoman & Supergirl
Super Heroes
Infusion Nurses (left/top)
Oncology Dept. (right/bottom)
Photos by: Seven Star Films